Methods
Methods
This agenda's methodology draws on relevant work39,40,41,42,43 and was co-developed by the Climate Cares Centre and Red Cross Red Crescent Climate Centre, with input from the CCM Global Advisory Board, Regional Communities of Practice, Lived Experience Working Group, and Wellcome. It aims to balance global standardisation with local and cultural needs and perspectives. The agenda was developed through a number of stages (Figure 1, see Appendix 3 - Detailed Methods for details).
Figure 1: Development of the Connecting Climate Minds research and action agendas, with numbers of contributors involved at each stage of the process. Note that not all numbers represent unique representatives, for example one person may have participated in multiple surveys. A minimum of 960 unique individuals participated in CCM dialogues, surveys and/or the development of the global agenda, although this is likely to underestimate the true number.
- Manafò E, Petermann L, Vandall-Walker V, Mason-Lai P. Patient and public engagement in priority setting: A systematic rapid review of the literature. PLoS One. 2018; 2(13). doi:10.1371/journal.pone.0193579.
- Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC medical research methodology. 2013;13(117). https://doi.org/10.1186/1471-2288-13-117
- Watson D, Mhlaba M, Molelekeng G, Chauke TA, Simao SC, Jenner S, Ware LJ, Barker M. How do we best engage young people in decision-making about their health? A scoping review of deliberative priority setting methods. International journal for equity in health. 2023;22(1), 17. https://doi.org/10.1186/s12939-022-01794-2
- Lockwood C, Munn Z, Porritt K. Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. International journal of evidence-based healthcare. 2015;13(3), 179–187. https://doi.org/10.1097/XEB.0000000000000062
- Pittens CACM, Elberse JE, Visse M, Abma TA, Broerse JEW. Research agendas involving patients: Factors that facilitate or impede translation of patients' perspectives in programming and implementation. Science and Public Policy. 2014;41(6). https://doi.org/10.1093/scipol/scu010